• Bassett Pediatrician Creates State’s First Rural Pediatric Registry to Study Health Outcomes among Transgender and Gender Nonconforming Youth

    Bassett Medical Center

    January 2, 2018

    7cdfd2451bec4bd8e97574e65cd581fc_f1871.jpgCooperstown, NY – “There is not a lot of evidence to help inform clinical care of transgender and gender nonconforming youth, particularly for rural areas,” explains Anne Gadomski, MD, pediatrician and director of the Bassett Research Institute in Cooperstown, NY. Gadomski was recently recognized by the NYS Department of Health for her work in support of gender wellness; she received the Worlds AIDS Day NY Commissioner’s Special Recognition award for establishing New York State’s first rural pediatric registry for transgender and gender nonconforming youth. It is also believed to be the country’s first rural-based registry for transgender youth.

    “The information we are compiling will help us address outcomes in youth and young adults receiving transgender care at the Bassett Healthcare Network Gender Wellness Center,” explains Gadomski. “It’s going to provide outcome information about the youth and young adults receiving transgender care, which will be used to inform evidence-based care going forward.”

    Participation in the registry is voluntary; currently, there are 113 patients participating who are in various stages of transition. The pediatric registry includes diagnoses, treatment, lab results and outcomes. The initiative was presented last November at a national scientific meeting in San Francisco by two of Bassett’s researchers, Jane O’Bryan and Kim Leon, who helped develop the registry.

    Gadomski says, “We expect that the database will increase practitioner understanding of specific clinical conditions and patient health care needs as well as help us identify trends that result from different interventions. Our goal is to continue to improve the care of transgender and gender nonconforming pediatric patients. Using the registry, we’ll also try to answer specific research questions such as, “Do psychological outcomes improve over the course of gender-affirming care?” 

    Carolyn Wolf-Gould, MD, who founded the Gender Wellness Center and nominated Gadomski for the state award, says, “Anne’s tireless efforts on behalf of our patients have made a tremendous difference already and this registry is another major step forward in advancing the care of transgender individuals.”

    Gadomski was also instrumental in securing Robert Wood Johnson Foundation funding for the Gender Wellness Center in Oneonta, which is working to become a center of excellence for transgender care and provide comprehensive, affirming medical, surgical and mental health services for gender nonconforming people and their loved ones.